Help us add tomorrows for people with cystic fibrosis!!

As many of you know, our sweet son, Owen, has cystic fibrosis. Cystic fibrosis is a fatal genetic disease which impacts the lungs, secretions, and digestion of the people it affects. Currently, the "average" life span of someone with CF is 37 years old-but that includes people with rare mutations and less severe presentations.  Owen has two copies of the most common mutation, DDF508.  While more is known about DDF508 mutation, it is also one of the most severe.

 

Since his diagnosis, Owen has had surgery to remove a damaged part of his small intestine, required three hospital stays (one for 24 days after his birth, one in April 2015 for 7 days after being exposed to RSV, and one in June 2015 for five days after his feeding tube was surgically implanted), taken medication before every meal to aid his body in digestion, attended frequent medical appointments, and endured multiple daily nebulizer treatments and manual chest physiotherapy. 

We have learned in Owen's short life that he is a fighter! And we plan to be there with him every step of the way, in the fight of our lives against cystic fibrosis. 
There is currently no cure for CF, but they are working on developing treatments to help people with CF live healthier lives. This life changing research relies heavily on donations from generous people like you. It is our hope that a cure will be found in Owen's lifetime!